THE RIGHTS TO PALLIATIVE CARE IN SUBSTANTIVE LEGAL CONTEXTS IN THE US AND UK

Authors

  • Pedithep Youyuenyong คณะนิติศาสตร์ มหาวิทยาลัยเชียงใหม่

Keywords:

Patient Autonomy, Palliative Care, Living Will, United States, United Kingdom

Abstract

       A palliative care works best when it is clear, simple to define and trust – both by the medical practitioners who rely on it when the improvement or maintenance of health in the last stages is necessary, and by the health care bodies that expect to put things right. While palliative and end of life care policy and guidance aim to ensure the palliative services and quality in enhancing the quality of life for life-limiting patients with serious illnesses, critical debates involving long-standing disputes over key aspects of palliative care and curative treatments in last stages, perspectives of patients and families, and ethical application of palliative care, largely within the foundational aspects of patient autonomy and self-determination, aim at clarifying or defending faith of the quality of life of patients. This paper concentrates on protection of the rights to palliative care in national contexts under the U.S. and UK legal systems, areas that are increasingly vital in today's public health. It deals with the broad laws and policies behind U.S. and UK approaches and the promotion of the rights to palliative care in regional and national contexts. These scopes need to be evaluated in the light of appropriate provision of palliative care. The concept of palliative care has been questioned because of debates surrounding palliative care and curative treatments in the last stages of life. As a result, the dispute over the right to palliative care has raged for a long time, resulting in the U.S. and UK laws.

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References

สำนักงานกฎหมาย สำนักงานเลขาธิการวุฒิสภา. (2565). รัฐธรรมนูญแห่งราชอาณาจักรไทย พุทธศักราช 2560 (แก้ไขเพิ่มเติมถึงปัจจุบัน). สืบค้นเมื่อ 11 พฤษภาคม 2569. จาก https://library.senate.go.th/document/Ext27142/27142037_0003.PDF

สำนักงานคณะกรรมการสุขภาพแห่งชาติ. (2550). พระราชบัญญัติสุขภาพแห่งชาติ พ.ศ. 2550. สืบค้นเมื่อ 11 พฤษภาคม 2569. จาก https://www.dms.go.th/backend/Content/Content_File/Information_Center/Attach/25621124013609AM_17.pdf

Brennan, F. (2007). “Palliative care as an international human right”. Journal of Pain and Symptom Management, 33(5), 494–499. https://doi.org/10.1016/j.jpainsymman.2007.02.022

Brennan, F., Gwyther, L., & Harding, R. (2008, January). Palliative care as a human right. Open Society Institute, Law and Health Initiative, Initiative on Palliative Care and Human Rights. https://www.opensocietyfoundations.org/uploads/eb4fa0f4-efd7-4732-b78c-2057841a6393/pchumanright_20080101.pdf

Burles, M., Holtslander, L., & Peternelj-Taylor, C. (2021). “Palliative and hospice care in correctional facilities: Integrating a family nursing approach to address relational barriers”. Cancer Nursing, 44(1), 29–36. https://doi.org/10.1097/NCC.0000000000000754

Center to Advance Palliative Care. (n.d.). About palliative care. https://www.capc.org/about/palliative-care/

Christian, T. J., Hassol, A., Brooks, G. A., Gu, Q., Kim, S., Landrum, M. B., & Keating, N. L. (2021). “How do claims-based measures of end-of-life care compare to family ratings of care quality?” Journal of the American Geriatrics Society, 69(4), 900–907. https://doi.org/10.1111/jgs.16905

Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., McClement, S., & Harlos, M. (2005). “Dignity therapy: A novel psychotherapeutic intervention for patients near the end of life”. Journal of Clinical Oncology, 23(24), 5520–5525. https://doi.org/10.1200/JCO.2005.08.391

Ciruzzi, M. S., Selandari, J. O., Tripodoro, V., Junin, M., Nitto, M., Colla, J. M., Kiman, R., Maglio, I., Propatto, A., Bonpland, V., Bozzolo, A., & Aizenberg, M. (n.d.). Palliative care as human rights. Microjuris. (MJ-DOC-15013-AR/MJD15013; MJ-DOC-15014-AR/MJD15014).

Connolly, M., Bell, M., Lawler, F., Timmins, F., & Ryder, M. (2022). “Hospital-based palliative and end-of-life care in the COVID-19 pandemic: A scoping review.” American Journal of Hospice & Palliative Care, 39(9), 1105–1120. https://doi.org/10.1177/10499091211057049

Cruzan v. Director, Missouri Department of Health, 497 U.S. 261 (1990). Library of Congress. https://tile.loc.gov/storage-services/service/ll/usrep/usrep497/usrep497261/usrep497261.pdf

Department of Health and Social Care, & Regulatory Policy Committee. (2025, March 25). Health and Care Act 2022. GOV.UK. https://www.gov.uk/government/collections/health-and-care-act-2022

Ezer, T., Lohman, D., & de Luca, G. B. (2018). “Palliative care and human rights: A decade of evolution in standards.” Journal of Pain and Symptom Management, 55(2S), S163–S169. https://doi.org/10.1016/j.jpainsymman.2017.03.027

Gwyther, L., Brennan, F., & Harding, R. (2009). “Advancing palliative care as a human right”. Journal of Pain and Symptom Management, 38(5), 767–774. https://doi.org/10.1016/j.jpainsymman.2009.03.003

Haraldsdottir, E., Cooper, M., & Richardson, H. (2025). “Developing person-centred care in hospices through the voice and leadership of nursing: Lessons from the United Kingdom”. Frontiers in Health Services, 5, 1619705. https://doi.org/10.3389/frhs.2025.1619705

Houska, A., & Loučka, M. (2019). “Patients’ autonomy at the end of life: A critical review." Journal of Pain and Symptom Management, 57(4), 835–845. https://doi.org/10.1016/j.jpainsymman.2018.12.339

International Association for Hospice and Palliative Care. (2018). Global consensus based palliative care definition. The International Association for Hospice and Palliative Care. https://iahpc.org/what-we-do/research/consensus-based-definition-of-palliative-care/definition/

Johns, L., Weightman, S., Blackburn, P., & McAuliffe, D. (2022). “A systematic literature review exploring the psychosocial aspects of palliative care provision for incarcerated persons: A human rights perspective”. International Journal of Prisoner Health, 18(4), 443–457. https://doi.org/10.1108/IJPH-02-2021-0017

New York State Department of Health. (n.d.). Palliative Care Information Act. https://www.health.ny.gov/professionals/patients/patient_rights/palliative_care/information_act.htm

Office of the United Nations High Commissioner for Human Rights. (n.d.). International Covenant on Economic, Social and Cultural Rights. United Nations. https://www.ohchr.org/en/instruments-mechanisms/instruments/international-covenant-economic-social-and-cultural-rights

Reymond, L., Parker, G., Gilles, L., & Cooper, K. (2018). “Home-based palliative care. Australian.” Journal of General Practice, 47(11), 747–752. https://doi.org/10.31128/AJGP-06-18-4607

S.1935 - Expanding Access to Palliative Care Act, 119th Congress (2025-2026) (2025, June 3). Congress.gov. https://www.congress.gov/bill/119th-congress/senate-bill/1935

S.2287 - Palliative Care and Hospice Education and Training Act, 119th Congress (2025-2026). (2025). Congress.gov. https://www.congress.gov/bill/119th-congress/senate-bill/2287

World Health Organization. (2020, August 5). Palliative Care. https://www.who.int/news-room/fact-sheets/detail/palliative-care

Xiao, J., Brenneis, C., Ibrahim, N., Bryan, A., & Fassbender, K. (2021). “Definitions of palliative care terms: A consensus-oriented decision-making process”. Journal of Palliative Medicine, 24(9), 1342–1350.

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Published

2026-06-30

How to Cite

Youyuenyong, P. (2026). THE RIGHTS TO PALLIATIVE CARE IN SUBSTANTIVE LEGAL CONTEXTS IN THE US AND UK. Saint John’s Journal (Journal of Humanities and Social Sciences), 29(44), 59–76. retrieved from https://so13.tci-thaijo.org/index.php/SJUJOURNAL/article/view/4272

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Section

Academic Article